Welcome to Raffy's Trust.org!

This is our little boy Raffy, as you can see he is drop dead gorgeous but he has some very serious difficulties in life.
Please take a few minutes to read the info and have a browse of the Son-Rise® link.
Thanks, Bri & Ruth

Sunday 30 May 2010

Great Ormond Street letter

We finally have an appointment for Great Ormond Street hospital feeding unit on 29th June! A couple of big questionnaires to fill in, a food diary to complete and a request for any documentation that relates to Raffy's drinking problems.

I sometimes feel that I am spending my whole life filling in long and difficult forms. We just seem to get one off in the post (after photocopying and queueing at the post office of course) and then it's another or possibly two at the same time.

Another big one will be getting Raffy statemented this Autumn/Winter.
From what I can gather, the entire process can take over 6 months. Cor blimey.

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