Welcome to Raffy's Trust.org!

This is our little boy Raffy, as you can see he is drop dead gorgeous but he has some very serious difficulties in life.
Please take a few minutes to read the info and have a browse of the Son-Rise® link.
Thanks, Bri & Ruth

Monday, 30 May 2011

Raffy Progress report!

We are looking to expand our small but brilliant volunteer team for Raffy's Son-Rise Program.

Our boy is progressing in all areas!
Raffy is...
Starting to have small conversations around his favourite topic - such as insects especially ladybirds, shapes, helicopters, octopi and cats!
Pretending to change in to imaginary creatures!
Using more gestures and facial expressions!
Riding a push-a-long-trike to go on adventures!
Doing more drawing!

If you live in the London/West Essex area please spread the word about joining Raffy's Team.

We are offering full FREE training with the Son-Rise program - a home based, child centred therapy.

We are looking for energetic, creative and loving volunteers to play 1:1 with Raphael (age 4) who is on the Autistic Spectrum in his custom fitted playroom.

This is a fantastic and unique opportunity to make a life-changing difference in a little boy’s future! Are you ready to be more giving, more accepting and creative?

Raphael is a wonderful happy boy who is verbal and becoming more connected and socially interactive.

We have a small team already in place and you will be doing 2x 2 hour sessions when fully trained (4 hours each week) and attending our fun goal setting team meeting every 2 weeks.

We pay towards travel and provide food at the team meetings.

A 6 month minimum commitment is needed so a consistent bond can be created with Raphael.

A professional reference is available from the non-profit organisation ASD Climbers if the 6 months are completed successfully.

Contact r_breckell@hotmail.com for an application form

Thank you! xxxxx

Wednesday, 18 May 2011

Helping Raffy to get the specialist treatment he needs to survive!

Raffy's beloved Nan is organising another Social Evening at St Gregory's Church Hall in Lydiate near Liverpool this Friday 20th May!
Gordon Hopwood will be providing the comedy and musical entertainment.
Admission is only £5 and all proceeds go towards getting Raffy and family to The Autism Treatment Centre of America in Massachusetts in December this year for 1 week! http://www.autismtreatmentcenter.org/

We need to raise £3,000 to pay for the rest of the week (we have already paid $5000 with savings and donations) and £2,000 for the travel costs.

The week will be full of one to one therapy for Raffy and training for his Mum and Dad so the family can come home and really develop his program at home. Raffy is still only accepting small amounts of thickened fluid from a spoon (fed by Mum or Dad) as he finds drinking too much of a strain. Sometimes Raffy will refuse fluid for entire days and this is a hugely stressful way to live. Mum has needed to give up work and Raffy needs to be monitored for dehydration and needs round the clock care. We have researched every available therapy (the NHS & Great Ormond St Hospital were unable to help) and the Autism Treatment Centre/Son-Rise Program Intensive is the one place we will be able to concentrate on this issue with 24/7 support and expertise.

Please help by coming to the Social evening and/or donating via this website.

Raffy is already developing in so many ways with the Son-Rise Program, we monitor his progress and know which goals to work on and how he will progress. His drinking issues need the specialist round the clock care provided at a week long Intensive.

If anyone has any fundraising ideas of their own, please contact me via this site, we would be eternally grateful.

I hope you enjoy the pictures of our beautiful boy and are inspired to help him with his journey through autism...