Raffy's beloved Nan is organising another Social Evening at St Gregory's Church Hall in Lydiate near Liverpool this Friday 20th May!
Gordon Hopwood will be providing the comedy and musical entertainment.
Admission is only £5 and all proceeds go towards getting Raffy and family to The Autism Treatment Centre of America in Massachusetts in December this year for 1 week! http://www.autismtreatmentcenter.org/
We need to raise £3,000 to pay for the rest of the week (we have already paid $5000 with savings and donations) and £2,000 for the travel costs.
The week will be full of one to one therapy for Raffy and training for his Mum and Dad so the family can come home and really develop his program at home. Raffy is still only accepting small amounts of thickened fluid from a spoon (fed by Mum or Dad) as he finds drinking too much of a strain. Sometimes Raffy will refuse fluid for entire days and this is a hugely stressful way to live. Mum has needed to give up work and Raffy needs to be monitored for dehydration and needs round the clock care. We have researched every available therapy (the NHS & Great Ormond St Hospital were unable to help) and the Autism Treatment Centre/Son-Rise Program Intensive is the one place we will be able to concentrate on this issue with 24/7 support and expertise.
Please help by coming to the Social evening and/or donating via this website.
Raffy is already developing in so many ways with the Son-Rise Program, we monitor his progress and know which goals to work on and how he will progress. His drinking issues need the specialist round the clock care provided at a week long Intensive.
If anyone has any fundraising ideas of their own, please contact me via this site, we would be eternally grateful.
I hope you enjoy the pictures of our beautiful boy and are inspired to help him with his journey through autism...
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