Welcome to Raffy's Trust.org!

This is our little boy Raffy, as you can see he is drop dead gorgeous but he has some very serious difficulties in life.
Please take a few minutes to read the info and have a browse of the Son-Rise® link.
Thanks, Bri & Ruth

Sunday, 10 October 2010

Sweet Psychosis, Cathy, blackboards and more!

It's been a busy week here. We've been painting up a magnetic blackboard (3 coats... 2 down one to go) in Raffy's room. The smell has been horrendous so there's been minimal playroom time and the poor lad has had to sleep downstairs. That has been the plan. He has illustrated his annoyance with prolonged screaming at bedtimes and alot of pushing and pulling especially of Mum. Anyway he has ended up getting in Mum and Dad's bed which has been lovely. But with Raffy there are always rather strict conditions. No covers allowed on him or anywhere near him... plus little sis has been copying. So there have been 3 nights of very uncomfortable lying awake. Small sister also likes to kick her teeny size 4 feet and is most comfortable when she is horizontal and can slam both her legs down hard on the mattress. It's been very eventful. Especially when Raffy's head got in the way at 3am.

Cathy has raised marvellous £400 plus from 'Running to the Beat' on 26th September.
Thanks Cathy, Nick, Felix, Katie & Lara! xxxxxxxx

Josie has launched her blog - a bid to lose 52lb in 52 weeks to raise money for Raffy's treatment!
Please visit her very entertaining website which launches tonight 10th Oct at midnight!
And comments please! Comments are great for helping with morale!

Hint hint! It's very hard to know if anyone is reading so please think about commenting on this site too! Just so we know there are people who care about Raphael and are interested in his journey.

Lou is back on Wednesday so please look out for a new weigh-in.... Really missed Lou last week she was training. It's the only day we get any help with Raffy!

Thanks everyone xxxxxxxxxxx

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