tag:blogger.com,1999:blog-19667566952311295052024-03-14T18:00:08.461+00:00Raffy's TrustRaffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.comBlogger108125tag:blogger.com,1999:blog-1966756695231129505.post-25056689196172405362021-04-17T15:54:00.001+01:002021-04-17T15:54:34.984+01:00Raffy Raccoon in Epping Forest<p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNu1QMgYAH6kwse6TElJ16HwjMqUQ6hFpITaycpm9kt1i4QENufQP7OGTir55GPfBWPe7ERG7cOMteWS3N0Q3cG3JN-aDovTWqQCx9gx2_5IQFVDsY3764jIb8kQjel7qdr2VJmeNdXrcw/s1600/raffyepping.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNu1QMgYAH6kwse6TElJ16HwjMqUQ6hFpITaycpm9kt1i4QENufQP7OGTir55GPfBWPe7ERG7cOMteWS3N0Q3cG3JN-aDovTWqQCx9gx2_5IQFVDsY3764jIb8kQjel7qdr2VJmeNdXrcw/w480-h640/raffyepping.jpeg" width="480" /></a></div><br /> <p></p>Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-68722965352962920232020-11-24T16:04:00.000+00:002020-11-24T16:04:55.576+00:00 Raffy is age 14 and growing!<div class="separator" style="clear: both; text-align: center;"><br /></div>I haven't updated this blog for over a year and it's amazing to see how much Raffy has grown up. He is now a teen and experimenting with taking selfies and becoming more independent.<div><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3tp8RpP5NE479-VBt1yfOG3cYukf1uhvgFm83xeEnuYaV0dVupMQCqi1ny7VAwdNdKRF8zeGMwtWRGWwg-aSiTWeAF9DhW1INKR822g3XVhUUtXtGpQdoYefaCo9QNdnl0yXLK-5H6SLR/s2048/stripyselfie.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3tp8RpP5NE479-VBt1yfOG3cYukf1uhvgFm83xeEnuYaV0dVupMQCqi1ny7VAwdNdKRF8zeGMwtWRGWwg-aSiTWeAF9DhW1INKR822g3XVhUUtXtGpQdoYefaCo9QNdnl0yXLK-5H6SLR/s320/stripyselfie.jpg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmtblP7sCJuonPf7KGKJoPl71u-dBsnjl7YG1gb1yiO8M9SvXNnf-kkKWStgb5tFmRv-_Fbf2ea15j4FaN15ddq1lmwPShb69u1IjWIqGleqF9UivUfBsOBw99RlqePMWcgTTBs5Lnq58J/s2048/gringreenselfie.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmtblP7sCJuonPf7KGKJoPl71u-dBsnjl7YG1gb1yiO8M9SvXNnf-kkKWStgb5tFmRv-_Fbf2ea15j4FaN15ddq1lmwPShb69u1IjWIqGleqF9UivUfBsOBw99RlqePMWcgTTBs5Lnq58J/s320/gringreenselfie.jpg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjF9_0Z_gszNgMMKF7KmYAUXPBV0rPKoT_bPkRKCoK0uLzelc4aYu_m6Dp-yE_SOYBLPMOEPh8v3csPwGTM1ulUJB6appL7ZmKjP_gGCGIHHw_GtVg0GYjHdSKD8dvJC4URTXHXEKOKf2gD/s2048/selfiegreenduck.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjF9_0Z_gszNgMMKF7KmYAUXPBV0rPKoT_bPkRKCoK0uLzelc4aYu_m6Dp-yE_SOYBLPMOEPh8v3csPwGTM1ulUJB6appL7ZmKjP_gGCGIHHw_GtVg0GYjHdSKD8dvJC4URTXHXEKOKf2gD/s320/selfiegreenduck.jpg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqkfaA7ujSfwBHyrCI4lQic3GwgaB2aWDJN3O8h620_LJfqGBKRdX6hE1GxVtOwYzf-inCW98rJwbvwkeq0zFNHr3CccGCprvjWVWqZBSJOnNjZXUlUfUsjulmU0evJoLwVgdjuO71VYwg/s2048/selfiegreen.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqkfaA7ujSfwBHyrCI4lQic3GwgaB2aWDJN3O8h620_LJfqGBKRdX6hE1GxVtOwYzf-inCW98rJwbvwkeq0zFNHr3CccGCprvjWVWqZBSJOnNjZXUlUfUsjulmU0evJoLwVgdjuO71VYwg/s320/selfiegreen.jpg" /></a></div> <div>All the photographs above were taken by Raffy himself. He is definitely getting in to the swing of finding his own identity :)</div><div> </div><div>Sadly, Raffy's beloved Anderson School closed permanently in April 2020 and without a suitable replacement, he remains at home. </div><div><br /></div><div>He enjoyed lockdown even though his mum continues to have health and mobility issues. </div><div>Raffy has been a star and become gradually more confident with helping around the house and having a go at cooking. He really is the sweetest person to have around!</div><div><br /></div><div>See Puss in boots below!</div><div><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitI52XhyXtN8e2rT17ki2hqBjEgj8smIJ_8MJIv0USCl3YSZ-e5kx3hQ7IrXOtdL6cr9phanlPt23I3FRLm5ViGZ3uqcjIPJjghUcdu02cnckSgnnkaVW14LCim7AuxMYYJRdBOpWtlEh1/s2048/parkfullshadow.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitI52XhyXtN8e2rT17ki2hqBjEgj8smIJ_8MJIv0USCl3YSZ-e5kx3hQ7IrXOtdL6cr9phanlPt23I3FRLm5ViGZ3uqcjIPJjghUcdu02cnckSgnnkaVW14LCim7AuxMYYJRdBOpWtlEh1/s320/parkfullshadow.jpg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3MDlmTTAR2Tl_YYXqJhmPZTZYX6G5yrPQD0jqVQlwC1mwqpGMwVL6SHxNQJj43hlMTT_IUw9vvZrdwQJjN8ucN6Voeq2fcjKYK2W9JCuicJm-S-_7nUX-NsJ8dW5LwTDTd2BpNXu-Dqrd/s2048/parkfacehood.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3MDlmTTAR2Tl_YYXqJhmPZTZYX6G5yrPQD0jqVQlwC1mwqpGMwVL6SHxNQJj43hlMTT_IUw9vvZrdwQJjN8ucN6Voeq2fcjKYK2W9JCuicJm-S-_7nUX-NsJ8dW5LwTDTd2BpNXu-Dqrd/s320/parkfacehood.jpg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj53GoUmZ76BNajzm0ypo_5tEKqqJOUhJP2tVECOkuy85WuuuB4B2J6bxkGWzl5-ANsb1NGmSveKy404rTX9XWiYo1Rxv_nIGULXI1IYKsdQhYfge5ofHNHoMFoGRNGygkC4R-LmGF3xmiP/s2048/parkfacehoodup2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj53GoUmZ76BNajzm0ypo_5tEKqqJOUhJP2tVECOkuy85WuuuB4B2J6bxkGWzl5-ANsb1NGmSveKy404rTX9XWiYo1Rxv_nIGULXI1IYKsdQhYfge5ofHNHoMFoGRNGygkC4R-LmGF3xmiP/s320/parkfacehoodup2.jpg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhndatg77kmXWAOjiedAgBHIAUxczz06_fXuT1JfEg8nYGQS5uGF_q_dPpH1BgMfj2zyOdjhDd5DYjnPZ02VB4KhvUZTCg4_2mbJ1sOaDPhvZ7T1UfXOYEmZ5rMuPACoNLQbvWEKoUk2kLf/s2048/playgroundface.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhndatg77kmXWAOjiedAgBHIAUxczz06_fXuT1JfEg8nYGQS5uGF_q_dPpH1BgMfj2zyOdjhDd5DYjnPZ02VB4KhvUZTCg4_2mbJ1sOaDPhvZ7T1UfXOYEmZ5rMuPACoNLQbvWEKoUk2kLf/s320/playgroundface.jpg" /></a></div><div><br /></div>Raffy wearing his beloved cat onesie and a pair of boots! <div>These are relatively new and fantastic developments 😸😺😻. As we approached Halloween, Raffy suddenly declared that he wanted to dress up for the first time and go out! Poor Raffy, the only year we couldn't go out for trick and treat due to Covid 19 restrictions!</div><div><br /><div>He'd decided spontaneously that he wanted to be a cat! We found him an adult sized outfit online (he's around 5'4.5 now..) and ordered. Meanwhile he asked to look at some boots to wear, GASP! Raffy has been increasingly managing to wear sandals when outside but socks and shoes have always been too far out of his comfort zone. He chose a pair of size 6UK boots (he let us measure his feet!), and we ordered...</div><div><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6a5ZgaUi5OqMEM0NaH8Rj00eLQ-uoUoVtFqosr0xrPe9M7R73B6XosqC9B0yYerTJNRXvUTzpJI0oLfKoG8gP36BvN40cFI3whTNY239dZtu8-jEreZBlHXgHcgbCQD22W72cDdb287q0/s1600/WhatsApp+Image+2020-11-01+at+12.51.35.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6a5ZgaUi5OqMEM0NaH8Rj00eLQ-uoUoVtFqosr0xrPe9M7R73B6XosqC9B0yYerTJNRXvUTzpJI0oLfKoG8gP36BvN40cFI3whTNY239dZtu8-jEreZBlHXgHcgbCQD22W72cDdb287q0/s320/WhatsApp+Image+2020-11-01+at+12.51.35.jpeg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwulF45UgW3HojzpUYf5rHyWW58eYApq63kaKyT8SnOrD-Rlk0_hqPSyb60reZX7sfam8kFKNcDH3gWEwctWH4Z6If4eF9vY_PrfphreiWJLxb7J2V4fcI3B1NI49ylPLRKRw0hnkrs83v/s1600/WhatsApp+Image+2020-11-01+at+12.51.18.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwulF45UgW3HojzpUYf5rHyWW58eYApq63kaKyT8SnOrD-Rlk0_hqPSyb60reZX7sfam8kFKNcDH3gWEwctWH4Z6If4eF9vY_PrfphreiWJLxb7J2V4fcI3B1NI49ylPLRKRw0hnkrs83v/s320/WhatsApp+Image+2020-11-01+at+12.51.18.jpeg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0sKYuyKuJ5HmlccDg44j7VXkPAaShnBAzYKKWC4wNV7KftUENKZnZiJXINs1EP2BkBLdaFJlLwSe0FLLA2Yi36xxiG0IHLf1tS_6uF1w3IPowEUh6uCr8NnsezAPg_nTfbxYdPhPXIT_2/s1600/WhatsApp+Image+2020-11-01+at+12.50.53.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0sKYuyKuJ5HmlccDg44j7VXkPAaShnBAzYKKWC4wNV7KftUENKZnZiJXINs1EP2BkBLdaFJlLwSe0FLLA2Yi36xxiG0IHLf1tS_6uF1w3IPowEUh6uCr8NnsezAPg_nTfbxYdPhPXIT_2/s320/WhatsApp+Image+2020-11-01+at+12.50.53.jpeg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl_Js93bF40-lks6Knux46VwG6djbKY22JKBXQERJnTWZ8D_KdNi_H3L26aoVuHiESyey3jR6M2Bn_VBVKahfx7axgrUbaJMpadsN8cCa1B-jJrdUr_KQuGyJIYrPq3OKoGjPqSegxM4ei/s1600/WhatsApp+Image+2020-11-01+at+12.51.51.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl_Js93bF40-lks6Knux46VwG6djbKY22JKBXQERJnTWZ8D_KdNi_H3L26aoVuHiESyey3jR6M2Bn_VBVKahfx7axgrUbaJMpadsN8cCa1B-jJrdUr_KQuGyJIYrPq3OKoGjPqSegxM4ei/s320/WhatsApp+Image+2020-11-01+at+12.51.51.jpeg" /></a></div><div><br /><div><br /></div><div>This was the big night, he wore his new star socks and boots and went out with little sis to see the neighbourhood pumpkins!</div><div>Since that night he has consented to go to the park and for walks wearing his onesie and boots. He still won't wear a coat but is pretty excited to be out in winter and relatively wrapped up warm and cosy, bounding around energetically and doing a bit of feline climbing!</div><div>This is the first time in 8 years he has been able to be ouside in the cold of winter time. We are so proud and happy for him. We all still had a great Halloween with a film night and gluten free spooky treats of our own.. 👻</div><div> </div><div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPqWvQrYjeT6IgfQkD2hlIj-OuYYO3kPeiK6MsZL6JnTwwFf53tpvaXdOxYecYyy96FizTwKI-lVZWvLxxO0_H1gQWb1-jg6SxhuoWDRzg-Z6sjR0iUkE-AoHwpuc9puq9Xc7_kYSBfoLi/s2048/bench.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPqWvQrYjeT6IgfQkD2hlIj-OuYYO3kPeiK6MsZL6JnTwwFf53tpvaXdOxYecYyy96FizTwKI-lVZWvLxxO0_H1gQWb1-jg6SxhuoWDRzg-Z6sjR0iUkE-AoHwpuc9puq9Xc7_kYSBfoLi/s320/bench.jpg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDH5D6xklW313iyJxbOHt5IHHPaSymnetEUxFrDm9eQZ7P4uOhS3W3GTZ1UZGL01201F8SM18Qu6_v8FteD96j5mqpv7xd_71sOtGxSZH9QwpNM8nt4XvckEWzzl64DAw3ImhY_19Ub-kV/s2048/parkfull.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDH5D6xklW313iyJxbOHt5IHHPaSymnetEUxFrDm9eQZ7P4uOhS3W3GTZ1UZGL01201F8SM18Qu6_v8FteD96j5mqpv7xd_71sOtGxSZH9QwpNM8nt4XvckEWzzl64DAw3ImhY_19Ub-kV/s320/parkfull.jpg" /></a></div><br /><div>So Raffy continues to shine and grow. We love him so much! He's asked if I can post another update at Christmas time so please watch this space. He's made a wish list...<br /><p><br /></p></div></div></div></div>Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-55014621633627677232019-06-15T00:48:00.001+01:002019-06-15T00:48:42.307+01:00Update 2019So much has happened in the last year. Raffy is now at high school in year 7!<br />
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<br />He was accepted at the Anderson, the National Autistic Society's (NAS) flagship school <a href="https://www.autism.org.uk/andersonschool/">https://www.autism.org.uk/andersonschool/</a><br />
We were amazed at Raffy's thoughtful and assertive answers at the interview.. "What do you do Raffy when something happens that you don't like?" R: "I discuss it with my mum and we try to make a deal!"<br />
The staff are supportive and enthusiastic and run the mainstream academic timetable in a purpose built, sensitively designed building. Lots of light and wide airy corridors. Classrooms all have access to a grassy inner courtyard so the kids can easily be outside when they need a break.<br />
<br />The academic are mainstream. Raffy needs to catch up with his learning and has a brilliant teacher to help him up to key stage 3 level. The important thing is that he loves learning and is excited to go to school. He's even wearing sandals every day and a school uniform. It's been a massive (literal!) step up.<br />
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Raffy is growing up!</div>
<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-77052832482377760342016-12-27T15:09:00.002+00:002016-12-27T18:08:17.885+00:00Raffy's 2016It's been a great, multi faceted year :)<br />
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We had a very successful Son-Rise Outreach with Gerd Winkler in April :) <a href="http://www.autismtreatmentcenter.org/">http://www.autismtreatmentcenter.org/</a><br />
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Raffy has continued to grow as a person and in September he hit his 10th birthday!<br />
It's the first year he has been excited to get a year older and recently count down the days to Christmas. He has embraced anticipation and patience!<br />
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He is showing his feelings and is more comfortable with his emotions. He is increasingly empathetic. He is witty and funny. And getting even better looking!<br />
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-87488595146557820512015-11-11T11:23:00.001+00:002015-11-11T11:26:21.386+00:00Last 3 days to donate to Raffy's Outreach!<br />
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<a href="https://crowdfunding.justgiving.com/ruth-breckell">https://crowdfunding.justgiving.com/ruth-breckell</a><br />
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Please click on the link and read our story.<br />
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I hope you can think about pledging any amount to help with Raffy's next stage of development.<br />
He is chatty, funny, giggly, interested in nature and experiments. He is still barefoot and has difficulty with confidence and emotional overload. Such a unique boy!<br />
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Thank you to everyone who reads about Raffy and thinks of him with love in their hearts.<br />
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We believe our boy is able to do anything and everything XXX<br />
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-68662952633442097112015-10-15T20:56:00.000+01:002015-10-15T21:10:37.343+01:00Just Giving!We've already talked about booking another Son-Rise Outreach with Gerd Winkler for April 2016.<br />
<a href="http://raffystrust.blogspot.co.uk/2015/09/next-step-outreach-in-april-2016-help.html">http://raffystrust.blogspot.co.uk/2015/09/next-step-outreach-in-april-2016-help.html</a><br />
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The outreach will cost just over £3,000 and we need help raising £2,000!<br />
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I have set up a Just Giving page here: <a href="https://crowdfunding.justgiving.com/ruth-breckell">https://crowdfunding.justgiving.com/ruth-breckell</a><br />
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Any amount would be appreciated. It would be great if everyone who is interested and loves Raffy could pledge £5! It would make a huge difference!<br />
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I hope you can help us reach the target! Thank you for reading X<br />
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Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-76442449681232924622015-09-27T10:08:00.000+01:002015-09-27T10:08:00.341+01:00Beavers!<div class="separator" style="clear: both; text-align: center;">
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Raffy has joined the local Beavers Group! </div>
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Beavers are the youngest in the scouting movement and now fortunately accept girls too. Raffy's little sister started in the spring. So Raffy has had ample chance to observe some of the other kids at drop off time.<br />
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We also went to a Sunday parade at the Church in the summer.<br />
At first Raffy wouldn't come inside for the service. However the sermon for that week was about seeking/finding and the congregation were all given a chocolate coin.<br />
Suddenly after an explanation Raffy, wanted to come in, sit down and listen...<br />
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We were all instructed to not eat the coin until the very end of the service after 3 hymns and some participatory learnings re patience... Meanwhile Raffy was answering some of the questions in the lesson and piping up from the back row with some nuggets of his own!<br />
He hummed his way through all of the hymns and waited with everyone else to open his coin!<br />
Afterwards he hunted for real coins in a bowl of cold baked beans, had his face painted with an orange octopus and made a clay octopus...<br />
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On the way home Raffy asked if he could join Beavers too. I DID explain that chocolate coins are not part of every session...<br />
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Raffy is slightly out of the age range but the district co ordinator and Linda the Beavers leader have kindly let him join the troupe! It's a great group and they do lots of fun activities.<br />
We have camped, Raffy has played some team games (he's in the Panthers) such as the egg and spoon race.. he's helped with all the activities and slotted in very well. They are a fun bunch of kids and a good mix of crazy and easy going ;) See Linda organising everyone in the next pic!<br />
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The leaders and volunteers are brilliant and Raffy has been made very welcome :) So chuffed! </div>
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Many thanks to 16th Epping Forest group, leaders - Linda, Ian, </div>
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Also to the volunteers - Ruth, Paul, Frank.</div>
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-85378330047109609042015-09-26T07:30:00.000+01:002015-09-26T07:30:00.138+01:00Raffy's 9th birthday!<br />
Raffy decided he would stay 7 again this year. He's not keen on the idea of growing up.<br />
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Looks like a green and blue bird has landed on his snack!<br />
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He asked for a microscope and a crystal making kit. And a new octopus (obviously).<br />
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After blowing out his candles he put his hands together, closed his eyes and made a wish (first time). I heard him whisper "I wish to be an Octy!"</div>
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Happy birthday wonder boy! We love you Raffy X</div>
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-67078062753855776912015-09-25T16:21:00.000+01:002015-10-15T21:04:30.583+01:00Next step... Outreach in April 2016... Help needed!I have a firm belief that Raffy can go the full distance with his development.<br />
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When I say that, I mean while retaining all his amazing unique perspectives and deep interests I believe he can become fully comfortable in our physical world, confident in himself and typically sociable with others.<br />
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When I look back at how far he has travelled and the challenges he has overcome (some of them life threatening), then I know when motivated he has the intelligence and tenacity to create a fully independent life filled with great experiences and happiness.<br />
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With all this in mind I have booked another Outreach with Son-Rise teacher, Gerd Winkler for April 2016 when he is over in Europe for his twice yearly tour. This time the cost converts to just over £3000 ($4650 - US dollars).<br />
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We have had two previous outreaches with Gerd - in August 2011 and April 2014. Both were invaluable. We are still paying off the one from 18 months ago. We know we need help with this one.<br />
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We pour everything we have in to helping Raffy with our time, money and expertise because we are the ones who believe in him and know him best. We have tried the the conventional routes, going through professionals and traditional schooling but their expectations are always low and their goals to do with fitting in and conformity. They inhibit rather than help and we have witnessed either a plateauing of development or outright regression. The Son-Rise model fits with our beliefs and the way we want to live as a family.<br />
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With all this in mind we have decided to fund raise to help with the costs of the next Outreach in April. Our goal is £3,000 and we have a few ideas in the pipeline.<br />
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We will be setting up a Just Giving page and organising some events. I do hope you can share this information and if it strikes a chord, donate any amount at all. It is all useful.<br />
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Many thanks for reading. </div>
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I will be posting up a Donate button and link to the Just Giving page in the next few days. X</div>
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-34235046433846980292015-09-24T22:42:00.000+01:002015-09-24T22:42:06.841+01:00Elyse, our SR volunteer<br />
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Elyse is our most recent Son-Rise volunteer. She has been working with Raffy since June this year. She is so enthusiastic and loving, it is wonderful having her as the latest member of Team Raffy.<br />
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She is very keen, creative and enthusiastic. Raffy has found a true friend. It is an honour for me to be able to contribute to her training with my own knowledge and experience.<br />
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Raffy is a delight to play with in so many ways, he is very adept at creating his own simple games and has an impish, imaginative sense of fun. He can also be rigid in his thinking and challenging in the playroom. I have seen Elyse really grow herself and her Son-Rise attitude in the last few months. This enables Raffy to grow too in a deep and permanent way. Elyse is in the UK until December and then she returns to her native Canada. We will miss her!<br />
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Elyse is also looking at training to become a certified Son-Rise Child Facilitator in the future and I really think she would be perfect. She would move to Sheffield Massachusetts USA. Lots of love to you , Elyse!</div>
<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-17186368443965952862015-09-14T11:59:00.000+01:002015-09-14T11:59:34.507+01:00Raffy UpdateI can't believe it's been so long since I wrote an update.<br />
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It's bitter sweet reading going back through the posts to see how Raffy has progressed.<br />
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He still continues to be a fantastic boy and a fascinating companion. He talks a hell of a lot these days! And is fond of telling the crazy imaginative adventures that seem to spin around his head. I think they are a glimpse of a powerful inner world that soothes him and enables him to deal with the myriad of difficulties in the outside world.<br />
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He's a jokey critter too and has a very original way of talking that is both hilarious and at times very perceptive. He is still a true original.<br />
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Toileting has been well and truly conquered! Raffy is much more independent at home. He washes his hands, is starting to brush his own teeth (still has a hard time with oral sensitivities and teeth brushing continues to be a challenge), can get dressed and undressed by himself and is more helpful with cleaning up and tidying.<br />
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We have seen a positive change with how Raffy deals with mishaps and mistakes. They still have an emotional impact but he moves through them more quickly and says 'sorry' when he thinks he needs to make amends.<br />
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He is much more confident at answering spontaneous questions and chatting to other people. This has developed to the point where he is now attending the local Beavers group with his younger sister! He really enjoys it and joins in most of the games.<br />
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Raffy has a good friendship with his younger sister and they play some very creative games where they laugh loudly and a lot!<br />
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So an all round amazing kid!<br />
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Stuff that is ongoing - he is still completely barefoot. Not even worn a sock for the last year (barefoot since Feb 2013)! Doesn't want to try a school. Doesn't like trying to read or write. Even though he knows all his letters and phonics and was until recently ahead of his sister with reading. Great affinity with numbers but now doesn't want to do any more sums... He is a very anxious boy who doesn't want to fail. Will write more on this another time.<br />
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We also have a fantastic Son-Rise volunteer called Elyse - who comes to play with Raffy at least 3 times a week (2 hour sessions). More about Elyse in the next post! Meanwhile please enjoy the mixture of recent photos and send positive thoughts our way. Thank you friends for reading. XRaffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-15889497611947140882015-09-10T15:34:00.000+01:002015-09-10T15:34:00.794+01:00Growing up<div class="separator" style="clear: both; text-align: center;">
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-36535010676770514012014-11-09T23:32:00.001+00:002014-11-09T23:32:22.970+00:00Autumn, barefoot, lego, star games<br />
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-82973998500943993262014-10-11T17:53:00.004+01:002014-10-11T17:53:37.677+01:00Autumn sunshine<div class="separator" style="clear: both; text-align: center;">
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-73074211188980557812014-09-15T11:37:00.000+01:002014-09-15T11:37:04.650+01:00Another birthday!Raffy decided he isn't ready to be 8 yet so told us that he will be 7 until Christmas. He enjoys being 7!<br />
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The morning was spent at the park and then a party with some Son-Rise pals.<br />
Raffy's favourite raw choc coconut slice (free from sugar, dairy, gluten and grains), indoor sparklers and a jet glider.<br />
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We all sang 'Happy Birthday' and Raffy joined in then blew his candles out! Great day.<br />
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He loved his home-made Figgy birthday card so much he's been taking it to bed every night!<br />
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-30321807418381018102014-09-02T19:02:00.000+01:002014-09-02T19:02:20.293+01:00Glastonbury, Lyme Regis and Charmouth<div class="separator" style="clear: both; text-align: center;">
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Playing with sister, paddling, looking for fossils, a trip up the Tor and to Chalice Well. </div>
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Raffy did great on our short break. </div>
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He went to the toilet all holiday! Down with nappies!</div>
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Wish summer could last a few weeks longer.</div>
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Will have to see how the cooler seasons progress. Raffy says he want to be barefoot forever! </div>
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Watch this space :)</div>
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-24489092354776121942014-08-21T11:36:00.000+01:002014-08-21T11:36:38.285+01:00Secret Garden Party<div class="separator" style="clear: both; text-align: center;">
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Barefoot summer days.</div>
<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-52924058022809111572014-07-11T22:48:00.001+01:002014-07-11T22:48:57.076+01:00Season of trees and festivals<br />
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<span style="font-family: inherit;">Raffy has been on two camping trips in the past month. One was a pop-up festival for a friends birthday with bands, DJ's games and a magician. </span></div>
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<span style="font-family: inherit;">Now we are gearing up for a proper 4-day arts and music festival in Cambridgeshire. The one and only Secret Garden Party! We have a pitch in the Sanctuary area offering Reiki and Osteopathy treatments to all and sundry plus hopefully seeing Public Enemy and Martha and the Vandellas! Who knows how the trip will pan out?! It really is a new one for all of us.</span></div>
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<span style="font-family: inherit;">I can't believe it's been so long since the last update. We have had a two day outreach with Gerd Winkler, a highly experienced Son-Rise Program<b><span style="font-size: 12pt;">®</span></b> teacher. It was a lot of money but was very much worth it. </span></div>
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<span style="font-family: inherit;">We are still reaping the benefits and implementing his ideas. So much love, respect and challenges for when Raffy was interactive and we saw our boy reach out of himself even more than before. </span></div>
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<span style="font-family: inherit;">It was so inspiring to see and also to have an expert on hand for every crazy eventuality! </span></div>
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<span style="font-family: inherit;">Raffy is at the stage where he is coming through his classic autism diagnosis with more sophisticated language, jokes, questions and expansion. He can seem more challenging at times because he is finding how the world works and testing things out with words and actions. </span></div>
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<span style="font-family: inherit;">We found out we can ask him to do more things like put his own seat belt on in the car as he really is able to do this. His motor skills in general are coming along. He is even finding out ways to keep us doing stuff for him by mentioning that only 8 year olds can do it and he is only 7!</span></div>
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<span style="font-family: inherit;">He is experimenting with climbing up the steps of the slide and coming down on his own, balancing on ropes and doing some hanging from monkey bars. All big risks for him.</span></div>
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<span style="font-family: inherit;">He is now vitally interested in trees and leaves and is busy identifying the local trees. He carries around his book - British Trees: A photographic guide to every common species (Collins Complete Guide) and is currently on the trail of a hickory nut!<br /><br />Our Son-Rise program has changed to allow more time outside the playroom with games around people and their interests mixed with some homeschooling elements. Such a brilliant period of growth. We are very very proud of him. </span><div>
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Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-76354115074723174592014-04-03T22:49:00.001+01:002014-04-03T22:49:23.862+01:00Our gorgeous lad :)<div class="separator" style="clear: both; text-align: center;">
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Raffy enjoying the good weather. Collecting flowers in yet another box!<br />
<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-9950080119854571262014-03-31T14:06:00.000+01:002014-03-31T14:06:25.060+01:00The Iron Giant<br />
Raffy is having some emotional breakthroughs and it's so very exciting to witness. In the last week he has started to show some empathy. He held my hand last week when I cried while reading a sad article in the newspaper.<br />
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Today he asked me if he could watch a film with me. We watched The Iron Giant (based on a Ted Hughes novel) and he rubbed his eyes when the deer was killed by the hunter and wanted a hug.<br />
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He's been having some physical and verbal outbursts over the past six months and this is a fantastic step forwards. He is a wonderful boy. It's not an easy path for him. We are so proud.<br />
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-58903829537003903372014-03-13T14:41:00.004+00:002014-03-13T14:41:36.433+00:00Autism Breakthrough! Essential reading for all :)<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKQjEjoStyJHh0QorPLJb8QXxaU0fT9FUqfeaFMIBzK30OIk5PvvtTQ-ITvKYG-4YdgEDJNMhZxIfhKkW8NQ1ewsedleGPym3_IVf_I27NPHZccqhhrAepyAVqdq4fmrHDh9nkRaLIP8K1/s1600/51X0mX4Bg9L.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKQjEjoStyJHh0QorPLJb8QXxaU0fT9FUqfeaFMIBzK30OIk5PvvtTQ-ITvKYG-4YdgEDJNMhZxIfhKkW8NQ1ewsedleGPym3_IVf_I27NPHZccqhhrAepyAVqdq4fmrHDh9nkRaLIP8K1/s1600/51X0mX4Bg9L.jpg" height="400" width="266" /></a></div>
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Raun Kaufman was the first Son-Rise child. He is now a biomedical expert, Son-Rise teacher and all round brilliant person (I've met him!)</div>
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This book is going to be the bible for autism parents and any professional who really wants to support and help families and kids/adults on the spectrum. Or anyone who wants to be part of the broader human race! Raun is the dude. </div>
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Pre order from Amazon UK in hardback or paperback.</div>
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<a href="http://www.amazon.co.uk/Autism-Breakthrough-K-Raun-Kaufman/dp/1250041112/ref=sr_1_1?s=books&ie=UTF8&qid=1394710770&sr=1-1&keywords=autism+breakthrough">http://www.amazon.co.uk/Autism-Breakthrough-K-Raun-Kaufman/dp/1250041112/ref=sr_1_1?s=books&ie=UTF8&qid=1394710770&sr=1-1&keywords=autism+breakthrough</a>Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-79911181632337483562014-03-05T22:00:00.000+00:002014-03-05T22:00:37.624+00:00Climbing the Mountain :-)<div class="separator" style="clear: both; text-align: center;">
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Here he is! Attending a party for the first time and having a great time in his unique way! It was a party for one of his sisters friends. He wasn't invited but ended up joining in a bit. </div>
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Slap bang in the middle of everyone singing 'Happy birthday', he yelled out "Who's birthday is it??!" </div>
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This is a serious machine mountain with it's babies. </div>
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Who are all wearing hats and being zapped by viruses.</div>
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Raffy asked me to take a picture of him waving the sticks from our new-to-us but broken xylophone! He wanted to check out the traces!!!</div>
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Toxic River </div>
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Another masterpiece by the resident creative genius (one of them!)</div>
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Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-4576903332192316932014-02-05T10:15:00.001+00:002014-02-05T10:15:41.232+00:00SleepEver since Raffy was born he has had problems with sleep. He has always found it hard to relax enough to drift off. As a baby we used to be rocking him and singing almost all night to try and get him to sleep. And he didn't sleep anywhere near the hours that other babies slept.<br />
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As he got older it got more extreme until last year he was awake until after midnight every night. Sometimes he would last until after 3am. Then be back awake at 7.30-8.30am.<br />
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When I say awake I mean hyper. Like a chatting, shouting, jumping bean. Demanding food, toys, scripting at a million miles an hour. There was no timetable or strategy we hadn't tried. I stopped mentioning it to anyone else because I think some people found it hard to compute! Brian and I did a shift system.<br />
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At the end of last year we started seeing naturopath and now with a cupboard full of supplements Raffy has started to relax in the evenings. It has made an unbelievable difference to our lives. Raffy now mostly goes to sleep from between 8 and 9pm and wakes around 7am. Breathe.Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-75555848504369815812014-01-14T12:27:00.001+00:002014-01-14T12:32:42.391+00:00The virus tree and some words!Raffy is getting interested in spelling, reading and writing. Very much on his own terms of course. He is loving finding out about the beginning of the universe and the Big Bang. Plus drawing virus trees and serious host cells... Bonk!<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYKhyphenhypheni1DYt-sPA-YANBNJt8WLzgc4-lUYdjQ_LSsd8lSst0xUMtdvvhT5rnLWFKoFklx3pa1dBGlyeiL0JXJ_5cRiWTqja1bqeHa_n4zTOGr8sG2yY63TvjRtmXoVHTcRXj7IeJCLK0n8U/s1600/bonk.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYKhyphenhypheni1DYt-sPA-YANBNJt8WLzgc4-lUYdjQ_LSsd8lSst0xUMtdvvhT5rnLWFKoFklx3pa1dBGlyeiL0JXJ_5cRiWTqja1bqeHa_n4zTOGr8sG2yY63TvjRtmXoVHTcRXj7IeJCLK0n8U/s320/bonk.jpg" width="320" /></a></div>
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<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0tag:blogger.com,1999:blog-1966756695231129505.post-36628491605834012372013-11-11T18:15:00.001+00:002013-11-13T10:04:56.477+00:00Games, words and follicles<div class="separator" style="clear: both; text-align: center;">
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News. </div>
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First of all he's had a birthday. The card is still up and intact. First year he hasn't had the urge to rip it up</div>
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Raffy is showing a keen interest in letters and words. </div>
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Our homemade games run along the lines of his current interest. The human biology book. </div>
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Favourite chapters include reproduction and sub atomic particles. </div>
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Mixed in with the usual octopi obsession. </div>
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It's generating lots of interesting questions for mum and dad</div>
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He's still a keen artist. </div>
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Here we have a masterpiece showing a uterus and one detailed ovary with zygote, morula, blastocyst.</div>
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Plus Totoro grinning bottom right. </div>
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He likes a bit of Japanese animation</div>
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Bottom line is Raffy has an amazing capacity for knowledge and humour. He is a challenging companion but so hilarious at times. He is playing with lil sis every day now. She wants to marry him. Even more than the boy next door :)</div>
<br />Raffy's Trusthttp://www.blogger.com/profile/03979748134147075393noreply@blogger.com0